I had paralytic polio at the age of five in 1960. I recovered fully and went on to raise a family, climb mountains, and live a full and exciting life.
In 1991 I was diagnosed with post-polio syndrome and put back into leg braces and was told I would experience slow progressive weakness and fatigue. I have.
I use leg braces and a walker and have an power chair for being in the community.
I am a writer and a poet and have published books and created some beautiful jewelry as well.
I never expected to be homebound, though, and here I sit on that threshold, not just unable to tolerate the fatigue of going out, but coping with immense fatigue without any exertion at all.
My days are being stolen from me. I sleep an average of five to eight hours a day now, and am very weak when I am up.
I am frightened, I am angry, I wanted more time just like the rest of us.
We never know when time will be stolen from our wishes and plans for our days.
I implore you to take the risks you have been thinking about now, before something unseen comes along and takes your time or energy away.
That’s all for now,